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Zackery Sullivan 1.13.2013 1:16And they all said I wouldnt.
My name is Zak, I am 21 years old as of December 4 2012, I have been diagnosed with S.B.S since I was injured at 6 months old. The reason I even have a chance to put anything on here is cause of my mother, *who by birth is my grandmother* she adopted me and has not once given up on me even when the doctors told her that I would never be able to walk unassisted or manage to make a complete, and coherent sentence, well im here to tell you that a doctor is not always right, because if you asked my friends what im like they would tell you that i hardly ever sit down or shut up, and I do this cause I was told I would never be able to so so in the first place. If you wish to find out what can become of a child diagnosed with S.B.S look me up on Facebook. As i said in the beginning I am now 21 and I plan to live for quite a while longer. *I have other disabilities, but that is a story for another time.*
Ann Bouwhuis 7.1.2012 15:41owner/Director
As an Owner /director of a small child care program I would love to see this information more readily available to young families.
Tiffany Polsley 6.29.2012 22:54Mother of a survivor
My daughter was shaken @ 14 weeks. She suffered a retinal hemorrhage, a brain bleed and a midline shift. Doctors said "death is imminent"...........and yet she lives! She lay in a coma for 3 days. Upon awakening, she suffered full paralysis on the left side and severe seizures. On the 7th day the seizures stopped. On the 9th day she was released from the hospital with Doctors still offering very little hope saying she would remain paralyzed and possibly blind. And here she is walking and able to see. She still has an array of difficulties with vision (her right eye is abnormally weaker than the right and her brain can use only one eye at a time), educationally, emotionally, intermittent seizures, a stutter, and a hand tremor. But she is a happy, loving young lady now reaching out to educate "normal people" the dangers of shaking a baby. There is hope. No matter what the doctors say, and thanks to NCSBS, and other organizations similar to it, we have a starting place to work with in our education efforts! Hugs and prayers to all of you....rnOceana and Mon, Tiffany!
Marion Brown Vertigans 4.11.2012 23:13RN-BC
Training invaluable.
Lisa Prihoda 4.4.2012 15:55Mrs. (Teacher)
I am a mother of a child who was shaken by a daycare provider and I like the others feel the need to educate people of SBS. I have not figured out what to do yet but I am constantly insprired. I would love any more ideas of how I can help to prevent this horrible thing from happening to other innocent victims like my son.
michelle horn 3.11.2012 20:45grandmother of sbs SURVIVOR
I am a grandmother turned parent of my 2 1/2 year old grandson who was shaken by either his mother or her boyfriend, never discovered which and neither have served any time. I am one of the fortunate ones whose grandson is healing amazingly. I will always remember Dr. Li's words after surgery "IF he survives he can have mild to severe cognitive...." I kind of stuck on the word IF. With many prayers and supports of people all across the states and even in some European countries, Kay has been with us for 10 months, many court dates, dr. appt and many more joyful days of "momma"!!! He could not walk or talk when he left the hospital, he was not an infant like many stories but 20 months old, he has since learned to walk (still has a bit of a drag but nothing severe) and is talking better and better every day with the help of all the therapists he will be back and ready to roll!!!!! I believe God has an amazing future planned for this little man and with my families help, he will succeed!!!
Renae McKee 2.23.2012 5:48Colby's MOM
My son is a 25 year old Shaken Baby Survivor. He was shaken by his biological father at age 6 weeks. Though he is a high functioning survivor there are still many things he needs assistance with, such as finances and his temper. The left side of his brain is atrophying and he has hydromas(fluid on the brain). He has been without treatment for almost three years due to the fact that he married a girl that feels there is nothing wrong with him, her mother feels the same. The ironic part of the family he married in to is that his mother-in0law is head of CPS over 60 counties in our area and she feels he has no deficits! They also paid for him to revoke his rights to his daughter by another girl, and changed his last name. I am at such a loss, they refuse to allow us to speak to him and I have no idea as to what they are telling him that would prevent him from calling us or coming home. Yes we voiced our upset about denying his child, but to deny MY child medical care is beyond my comprehension. I want him to live a long and healthy life, and they should too. I also believe that this mother-in-law has used her power in our community to her advantage in order to make her daughter happy. She is supposed to uphold the law and protect children. She has even paid for fertility treatment for her daughter and they are expecting a baby in June. I feel she paid for one baby to go away and paid for her own daughter to have his child. The whole situation is sick. I have contacted everyone in any type of authority and have had every door closed in my face. I have a relationship with my granddaughter, who looks just like my son. I am grateful for that relationship. My son tried to end the relationship with his current wife prior to their marriage in order to be with his daughter and her mother, but the current girlfriend claimed then that she was pregnant, so he married her with out us knowing. The lat time I spoke to the mother-in-law she said it is because we have a relationship with our granddaughter that we can not have one with our son. WHAT???? I feel that the more people that love you the healthier you are. I am always respectful to this mother-in-law and always thank her for loving my son, but is she really loving him? Preventing medical care that could change his life for the better is not love. I am afraid that they prevent medical care in order to keep him in control, if he were to have the shunts placed in order to drain the fluid then maybe he would realize what he has done??? I do not know anymore, they have threatened us with the police if we continue to try and contact him, well bring it on. I want to be before a judge to show him how this CPS official has behaved. Please Pray for us as only God can change things now. Thank you for reading this. God Bless, Renae
Randy Mead 11.8.2010 18:43Survivor Story
Three and a half years ago, my granddaughter was shaken by her mother, our daughter-in-law. At the time they told us that if she survived at all she would never surpass a two month development level. One doctor said it was one of the worst cases she had ever seen. I spent nearly day in the hospital with Lili. When she was released, I took responsibility for her. A month after her release, my wife and I became legal guardians and in July of last year we adopted her. During the time since, Lili has had therapy four days a week. She gets hands on from my wife and I constantly. A few weeks ago, her therapaist performed an assessment on her development and had her rated at twenty one months. Two weeks ago she started walking. She has been calling me Dada for two months. She is an inspiration to me every single day. We have a long road ahead of us, but to have her where she is, is a miracle. A few years ago we shared Lili's story with a local TV station so that we could raise awareness for Shaken Baby Syndrome. Lili is an amazing young lady. She surprises us every single day. She should be an inspiration to anyone that miracles can happen and doctors don't always know everything.
Robin Kemp 11.8.2010 9:01Director, CCP&E
God Bless
Lindsey Scholar 9.16.2010 8:54Mother of Survivor
It was such a pleasure to meet the amazing people behind the National Center this week! If there is any way I can be of help to families in the MN/ND area, please feel free to contact me! My email is lindsey_scholar@hotmail.com, and I can pass on my phone number if needed as well! Just get in touch! -Lindsey Scholar-Mother to Taylor, SBS Survivor of 9 yrs